Category: hearing assistance dogs

Stupid Is as Stupid Does

Published on by hearingelmo8 Comments
Major tail wag... guess who isn't normally allowed up here?
Major tail wag... guess who isn't normally allowed up here?
face-to-face-0021
What's a dog to do when YOU are down THERE?

Limited by YOUR Barriers

I’ve gone “round and round” about even sharing this with you, as I’ve already caught a lot of GRIEF from my beloved family. I decided to go ahead and post about it, however, because I did learn some things about myself and limitations.

About a week and a half ago, I got what SEEMED like a wonderful idea. I was sitting on my deck drinking my morning tea in the brisk air. Not a cloud in the sky, which meant I was going to have a “good balance day“. Chloe was dozing at my feet. The kids were still in bed. I had a great night’s sleep.

For the past several weeks I had noticed a dead vine hanging on the corner of my house. I also noticed that it was level with the deck in my backyard. Being the intelligent woman that I am (clears throat) I ALSO noticed that it was within arm’s reach of my deck if one was but to “lean a little”. When I first noticed it, my thought was that “I need to get Terry to remove that vine. It bugs me”.

Well sitting there on my deck and feeling particularly FINE, I decided that I would reach around the corner of the deck and grab the vine and jerk it off. Eyesore gone… and I didn’t even have to bother Terry!

Now our deck has a barricade at the staircase, because the stairs are dangerously steep. We plan to replace our deck in the next year, and my biggest “plan of action” is to make a more gradual staircase to the yard below. For now it is barricaded so dogs do not injure themselves going 100 mph down the stairs. (It also keeps ME from thinking I can descend it safely!)

I told Chloe, “Chloe STAY. I’m going to just step over here and grab this vine.”

As soon as I put my leg over the rail of the deck she SHOT out of her sit/stay and looked at me with “fear and trembling“. If she could have said, “What the HECK are ya doin’?” she would have!

I perched on the rail and pointed my finger at her and said, “Chloe! Sit! Down! STAY!” She lay there with her forehead all wrinkled up and eyes wide as I slipped my other leg over the rail. I remember thinking, “She is really a piece of WORK! I mean this is easy, it’ll take me 10 seconds!”

That’s the last thought I had.

Stupid Is as Stupid Does

If a person with hearing loss has a balance disorder as well, it just isn’t smart to do things… UP. High. On. Purpose.

Sigh.

I’m not sure how long I was out. When I came too, I could see Chloe barking from the deck above me. She was no longer in a down/stay. (Obviously, I didn’t fuss at her).

I lay there a minute to evaluate “where it hurt“. It only took a second to realize that it was my leg. A stick was poking out of my calf near my ankle and it certainly hurt!

Here’s a picture of:

STUPID:

STUPID
STUPID

LONG-TERM CONSEQUENCES OF STUPID:

My ankle 10 days following STUPID
My ankle 10 days following STUPID

Chloe couldn’t get to me, and was barking like crazy. I couldn’t have been out very long, because I’m sure her barking would have eventually woke up one of my kids. She has a really loud hound bark, (not at ALL feminine!).

Barriers Put Up by ME

As I sat there pulling the stick out of my leg I began to talk to Chloe. As I talked, she stopped barking and just sat there looking down at me with a look of panic on her face.

The real dilemma? All the doors were locked! I was going to have to get to the staircase across the yard, get up the steps and over the semi-permanent barrier we had erected “for safety’s sake”. The door from the deck to the house was the only one unlocked. I could have knocked, but the metal security door under the deck to our laundry room is solid and doesn’t produce a very loud knock.

To make a very long … somewhat boring story – SHORTER (grin), I made it inside. It took me awhile, and I had to find my cochlear implant before even starting on the “trip”! Chloe whined her encouragement the entire way.

My kids were pretty surprised to come upstairs for breakfast to find me with my foot in the air with ice on it. Ok… actually I’m stretching the truth here. My kids know me. They weren’t at ALL surprised to come upstairs to find me with my foot in the air and ice on it.

They DID call dibs on who got to call “Dad” and tell him what happened.

Barriers Can be Good

I put up that barrier for a reason. It should have been a reminder to me just how high off the ground I was. The barrier was to serve as a preventative for descending to the yard below from the deck. By-passing the stairs all together was just a little bit STUPID. That barrier should have served as a reminder AND a preventative.

Sometimes we put up barriers in our lives to protect ourselves. Maybe you’ve learned the hard way to avoid critical people. You put up a block… a barrier to not allow people like that close to you. The barrier can keep people who aren’t “safe” for you emotionally, at a distance that is healthier for YOU.

But why do we sometimes slip a leg over the railing to by-pass the barrier? Why do we seem to embrace people who have a history of causing us emotional duress? Perhaps someone with an expression like Chloe’s, looks on in concern and asks carefully, “do you know what it is you are doing?” Ignoring the possibility that they may be right, you slip your leg over the rail anyway and think, “Gee! They are a piece of WORK!”

Friends? The only work is that long walk “home” after falling on your butt. It may take years even to get back to a healthy place. Almost “home“, and you step over a familiar looking barrier that you had up as a warning and preventative prior to being duped again.

Safe People

Surround yourself with “safe people“. These folks are individuals who bring out the best in you. They love you warts and all. They are an encouragement to you, and cheer lead you to reach for your dreams.

What’s tough is when some of those people who aren’t safe are related to you. There are times you have to interact, but you can learn to do so in a way that they don’t breach even the barriers you put up for them.

I am not encouraging an unforgiving heart either. If someone is truly repentant (meaning they have made a CHANGE) and want to be a friend to you again, you should be willing to trust they mean it. If their efforts fail, however, and they still are a “toxic person”, at least you have the experience and “supplies handy” to put that barrier right back up.

Sigh.

You know the BOOGER of it?

That. Vine. Is. Still. There.

Denise Portis

© 2009 Hearing Loss Journal

Reflections from Baby Mirrors

Published on by hearingelmo1 Comment
How do I keep an eye on Chloe?
How do I keep an eye on Chloe?

Baby Mirrors for Vans

I had only been matched with Chloe about a month, when I overheard another client from Fidos For Freedom say she had a “baby mirror” in her van. She, too, was late-deafened, and she explained that having the “baby mirror” attached to the rear-view mirror, added confidence about how her canine partner was doing “back there“.

I took a picture of Chloe at work yesterday next to the mirror. (It cracks me up that the Chloe BOBBLE-HEAD made it in the picture too… it’s a long story. I needed a quick way to identify MY silver van from everyone else’s!) Normally, Chloe is in the seat in the far back of the van. She has a special seatbelt, as well as a “sling” that zips her up in order to keep her from sliding on the floor should I make a sudden stop.

Because I have a hearing loss, I depend on that mirror to help me see Chloe. I suppose you could say I hear pretty good with my eyes. The peace of mind this little mirror has brought to me, was well worth the $4.99 that I paid for it at Wal-mart.

The reflection I view in that handy little mirror, gives me confidence and assurance about the well-being of my dog. I see her at a different angle, and can evaluate whether or not I need to speak to her or praise her.

Baby Mirrors for Life

I think too much. Perhaps it’s because I’m married to a Psychologist; or, it may be that as my oldest daughter is a Psychology major, I’m encouraged to THINK. I often “reflect” when I enter a really effective quiet time of thinking/evaluating my life. To reflect is to think seriously about and ponder the past. (This according to my own understanding of the word that is!) Confucius said, “By three methods we may learn wisdom: first, by reflection, which is noblest; second, by imitation, which is easiest; and third, by experience, which is most bitter.” I want to be noble.

I’ve discovered that it’s the “baby mirrors”of life… the angles, or viewpoints that are not a direct line of sight, that give me the best perspective of where I am and how I am functioning.

I suppose an obvious question we ask ourselves when we are evaluating “how are we doin’?” would be, “Am I happy?” However, happiness is not JOY, and the latter is what lasts… what gives us real peace.

FIERCE JOY

A friend of mine writes at a wonderful blog entitled: “The Grace and Wonder of God“. She recently wrote a post called, “Fierce Glory“. I’ll let you read the post, because frankly she said it much better than I could. Sometimes her posts end up on the back burner of my mind – just a simmerin’ away while I contemplate the truths she shared along side of the the reality of my own life.

There are times in my life where I feel desperately unhappy. Those times often occur during times that I put my eyes on “self” and have major PITY PARTIES that family and friends are encouraged to attend. Reality bites, and the “norm” is that I’m at that party all by myself.

I don’t think it’s wrong to acknowledge that sometimes we just aren’t happy. But happiness is a choice (it’s even the title of a great book!). If I need to feel unhappy for awhile, that’s OK. It’s not OK to LIVE THERE. Even in the midst of feeling unhappy, I can and should have joy.

Life can suck. (grin) My joy is not dependent on whether or not I am happy. It’s deeper than that. When God changed me, that inner part of me morphed into a confident child of the King. As a matter of fact, sometimes when I’m really feeling unhappy, what turns that around for me is simply being reminded of my joy. I am FIERCELY joyful.

Heck! The price Christ paid to make sure I had that peace… that assurance,  was too high to act as if it is temporary. The reminder of why I have TRUE joy, feels like a fire rising up within my very soul. My tearful, depressed, worry-bent spine is lifted and straightened with the power of that knowledge. Perhaps it’s a little bit like that saying, “I am WOMAN, hear me ROAR!”  I am HIS, I have JOY.

Lack of Joy is a Red Flag

I was recently contacted by someone through my blog. She is 33-years-old and has started to lose her hearing. Just as she makes adjustments in her life and “finds peace”, her hearing fluctuates and she’s back to “square one”. She admitted to me that the constant battle to “stay sane” is wearing her out. She has thought about how easy it would be to give up the fight. After probing a little bit, she admitted that this could mean “dropping out of life”, or even “taking her life”. (By the way, I have her permission to share this without using her name of course).

I’ve been there. Trying to constantly adapt can wear the starch out of any of us. An acquired disability that is in a constant state of “change” can make someone feel like “givin’ it up”.

In January of 2003, I was “there”. I had just lost more of my hearing and was having trouble communicating with even those closest to me. I was alone in my car headed to a meeting at my church. I remember thinking, “Wow. It would be so easy to just turn the wheel and drive off the interstate at 65 mph. It would be over quickly. No work involved. Those who might miss me would get over it quickly.” It scared me spitless that I found myself there. Perhaps that is why God continues to put people in my life who are also “there”. I “get them”, for I’ve lived that same roller coaster of thought.

It took the reminder of why I have JOY, that I began to “see past today”. If you do not have JOY, you may never find that true peace all of us yearn for in our lives. If you can STAY unhappy, and truly have no reason to exist – take my word for it that this is a RED flag.

Don’t Primp – Look!

Get a “baby mirror” for your life. Stop your primping. Don’t just look at what everyone else sees. Look past that. Check out the different angles that are “you”. Do you have joy? Are you unhappy too much? What do the answers to those questions tell you about your reflection?

I’ll close out this long-winded post with a great song one of my students signed in class recently. I love the words to the song. I’m not a huge Christian Aguilera fan, but the girl can SING.

“Reflection”

Look at me
You may think you see
Who I really am
But you’ll never know me
Every day
It’s as if I play a part
Now I see
If I wear a mask
I can fool the world
But I cannot fool my heart

Who is that girl I see
Staring straight back at me?
When will my reflection show
Who I am inside?

I am now
In a world where I
Have to hide my heart
And what I believe in
But somehow
I will show the world
What’s inside my heart
And be loved for who I am

Who is that girl I see
Staring straight back at me?
Why is my reflection
Someone I don’t know?
Must I pretend that I’m
Someone else for all time?
When will my reflection show
Who I am inside?

There’s a heart that must be
Free to fly
That burns with a need to know
The reason why

Why must we all conceal
What we think, how we feel?
Must there be a secret me
I’m forced to hide?
I won’t pretend that I’m
Someone else for all time
When will my reflection show
Who I am inside?
When will my reflection show
Who I am inside?

Denise Portis

© 2009 Hearing Loss Journal

Passing with FLYING Colors

Published on by hearingelmo7 Comments

aquarium-007

Dolphin Show? Nooooo Problem!

We’ve been to the National Aquarium in Baltimore since my “match” with Chloe, but I choose to sit out during the Dolphin Show. We were “new enough” that I did not know what to expect. This past Saturday we met some new friends at the Aquarium. After soliciting the advice and opinions of fellow Fidos For Freedom folks (geesh… say that 5 times really fast!), I decided to take Chloe to the Dolphin Show. I went a little early so I could pick my own seat. I knew I didn’t want in the “Splash Zone”, but I also did not want to sit as close as where the hearing assistive section was situated. I hear “voices” well enough with my CI, so I decided we’d sit where it was best for CHLOE.

This decision meant in the back and up HIGH – grin! With my poor balance, it took some quickly whispered prayers, Chloe’s steady counter-balance, and a husband walking immediately behind my weaving, dizzy, umm…. BEHIND, for me to get where I felt “safe” for Chloe’s sake.

aquarium-005 Most of the time she stayed down on her blanket, and I was not even forced to reinforce the behavior with her treats. She was OK until she heard the dolphins making sounds. I couldn’t hear it, of course, but my husband said they chattered, chirped and made other interesting noises. Chloe would “pop up” to take a look, but would immediately go back down when I reminded her to do so.

At one point, the crowd burst into applause and exclaimed, “OH!” very loudly. Chloe popped up to take a look, and I found her staring in astonishment! A dolphin was doing the “high jump”, where it burst from the water to touch a ball extended high above the water. If Chloe’s jaw could have dropped open, I’m sure it would have. (I did have to ask her twice after that to go back to a “down”!)

Chloe did great at the Aquarium. aquarium-001 I suppose the biggest “chore” was just keeping her from being stepped on by the crowds, and insuring she was in a “safe place”. I had to put her in “place” a couple of times (opposite of “heel”, to the right). I can’t leave her there very long due to…

… As the World Turns

Meniere’s disease is different in every individual. Although symptoms may be similar, they are never identical. Some people develop Meniere’s along WITH unexplained hearing loss, some people have it without any evidence of hearing loss at all! Some people experience tinnitus (ringing, buzzing, whistling), nausea, dizziness, vertigo, blackouts, blurred vision, and much more.

In a simple, layman’s description:  my world spins counter-clockwise. With Chloe in “heel” (although a modified one as she is slightly forward of a formal “heel” due to my inability to see lower, left peripherally), she actually provides a “check” to my slowly, moving world. As my visual field and brain cause me to feel as if I’m spinning left, her “brace” in “heel” sort of SNAPS my visual field back to where it belongs. She is standing, or sitting STILL, which allows my focus to re-establish center as I am NOT “sitting still”. When she is in “place” however, her body isn’t in a position where it enters my counter-clockwise “spin”. Confusing? (grin) Try explaining the individuality of Meniere’s someday!

Let’s just say I’m glad she is in “heel” MOST of the time. I practice “place” and “circle right” as they are occasionally needed.

All So “Normal” for Us

We also went to the shops near the Aquarium, and then waited for about 45 minutes to eat at The Cheesecake Factory. I can hear voices in quiet environments at normal speaking levels. I cannot hear voices in places with a great deal of background noise, nor can I hear whispered things. I tend to miss all of the exclamations from the general public when they see Chloe do something for me.

When she rolls her own blanket up for me so that it is high enough to reach, or picks up her own leash to hand it to me, I do not give it a 2nd thought anymore. She picks up the end of my cane until it’s high enough for me to grab, picks up dropped items like menus or pamphlets, and just has a GRAND time doing it! Although my family are also accustomed to Chloe being by my side and “helping”, they hear those comments that I do not when we are in a new place.

What can be really fun is to see the look on everyone’s face when I remove Chloe’s vest outside for a short break. My dog morphs into “Miss Congeniality”.

Something is ALWAYS Learned

Even when everything does NOT go as smoothly as Saturday did, I still learn important lessons. The least significant lesson may be a reminder of what should be worked on with more diligence. “Reality checks” are great teachers.

Having a working dog does not mean that I do not have to WORK at adapting. My cochlear implant allows me to hear, and yet I am still deaf. I use a bright purple cane, but I still fall sometimes. Chloe acts as my ears, but I will still misunderstand even a noise I am alerted to at times! How we react when everything does NOT go “great” is a good measure of how we are “really” coping with an acquired disability.

Tomorrow I may have a different opinion, but right now I think I’m “passing with FLYING colors!

Denise Portis

© 2009 Hearing Loss Journal

The Vest is Really Always “On”

Published on by hearingelmo3 Comments

harpers-ferry-october-2008-at-river

All Work and No Play?

Chloe doesn’t wear her vest in the house, and I sometimes take her to places where the “vest” stays in the van. Harper’s Ferry is one of those places… although I make her wear it if we are there during “peak” season because the crowds are so large. Lucky for us we live close enough that we go frequently, and normally NOT during peak season!

It’s good for her to “just be a dog” sometimes. And yet… Chloe doesn’t “turn off” her training when she does not have her vest. On the contrary, she does MOST of her hearing alerts when her vest is hanging up by the front door! I work 4 days a week from home, and so when the phone rings, kitchen timer beeps, or doorbell dings, she alerts me to the fact and “takes me there”. Even at Harpers Ferry we discovered she still realized I couldn’t hear well and would alert when “vest-less”. It was at Harpers Ferry that we first realized that she alerts the same and takes me to whomever calls “Denise” OR “Mom”.

Chloe gets plenty of playtime, but she really seems to “get” that regardless of that vest, I need her ears.

I Feel NAKED!

There have been a few times when I left Chloe at home and went to something without her. When my daughter (who has a horrible phobia of needles) went to get blood work prior to starting college, she needed my undivided attention. As a matter of fact, she not only needed my attention, but also both hands and a knee to keep her propped up after swooning. The girl hates needles!

When our family went to Catoctin Wildlife Preserve, I wisely left Chloe at home. It’s not a great idea to take a working dog to a place where things would think she was “dinner”.

On these rare occasions, I have felt positively NAKED without that leash in my hands. I am so accustomed to her presence and help, I feel very strange indeed to be without her. My husband is always glad to have her along as well, for he gets a little irritated when I slip up and tell him to “heel“.

dsc010941

It’s Great Knowing She Likes to Work

We were at the bank today taking care of some business for our chapter of the Hearing Loss Association of America. As I sat waiting for the woman I needed to see, Chloe stayed in a nice down/stay at my feet. We finally were able to go back and see the woman we had an appointment with, but were stopped by a man waiting in line. He had big tears in his eyes and he told me how beautiful Chloe was and, “… she just adores you! She watches you non-stop… every move you make! She only looks away when someone new walks into the bank and she flops her tail at them and then turns to stare at you again!”

Chloe loves people, and loves to work. That has to rank right up there to being one of the most important things about a working dog… that they love to work.

My “Spiritual” Vest is Always “ON”

Hopefully I’m a person of faith who lives what I believe even outside of Sunday morning services. I try to be “real” and genuine. My faith has become such an ingrained part of who I am, it’s impossible to separate the two. I get some “good natured flack” from time to time about mentioning my faith on the blog so much. However, I’m here and functioning as well as I do as a direct result of my relationship with Christ. I can’t pretend to be something I’m not, and I’ve completely HIS.

Sure, sometimes my mouth negates the fact I am a person of faith. When I sin? It’s ALWAYS with my mouth. My prayer every morning before my feet hit the floor is “Lord, guard my tongue today!” I pray He can use this big mouth for some good. I’m grateful He does not call the ‘qualified‘, rather He ‘qualifies” the called. May I always live like my “vest” is on!

My Teacher Hat is Always On

I guess because I’m a teacher, it’s really hard for me not to be in “teacher mode”. The kids tease me sometimes about making “everything into a learning session”. From correcting their grammar when speaking, to insisting on learning the history and background of a place we are visiting for the day, I end up in a “did ya know?” speech nine times out of ten!

Now that I’ve started back to school myself with the goal of eventually teaching on the community college level, that will likely get even worse. I’m working towards my Masters in Psychology. I noticed on the online biography “background” page, that I’m the only one pictured in my profile with a dog.  (smile)

She’s THAT much a part of my life…

Denise Portis

© 2009 Hearing Loss Journal

“Worry” is the Darkroom in Which “Negatives” can Develop

Published on by hearingelmo4 Comments

chloe-gl-001

Chloe in her new “Gentle Leader” harness hlaa-feb-0362

chloe-gl-002 Oops… the strap is a little crooked!

Hounds a-Worryin’ Over It!

Premier Pets did a DEMO for Fidos For Freedom on Saturday. I registered in advance, and for my efforts received a “Gentle Leader” harness just for attending. Chloe and I use a “plastic prong” collar for training and “work”, although it is rarely needed now that we’ve been working together for so long. I still utilize it because to Chloe it means “I’m working” as much as her vest does. If someone who is illiterate notices her and tries to coax her close for some petting, I need only gently pull and release and she immediately remembers to stay in a nice sit/stay. Numerous teams at Fidos For Freedom use the “Gentle Leader” however, so since I was going to get one free I wasn’t going to argue!

Chloe is NOT thrilled with it. Honestly, when I first put it on her, her EYES ACTUALLY CROSSED looking down at the strap on her nose! I laughed hysterically, which hurt my poor hound dog’s feelings. After apologizing, I adjusted straps and made sure the fit was right… begged for some 2nd opinions, and then walked her around the training center for about 20 minutes. I’m sure if I NEEDED the control of the “Gentle Leader”, she would become accustomed to it fairly quickly.

For that first 20 minutes, she “worried” over it almost obsessively. She followed commands, but even when in “heel” tried to rub it off against my leg! When we stopped, she’d use her paw and try to slip it over the edge of her nose! (A proper fit insures this cannot be done!) Bottom line, the harness looked lovely on her, but her attitude was peeved. She “worried” over it until our stops in a “sit/stay” had her pouting and turning her head away from me. After about fifteen minutes, her tail was even drooping. “Worry” had quickly cultivated real “negative weeds” in the heart and mind of my friendly working dog! In the end, she was just TICKED OFF. Right before we left I slipped it off of her so I could get her to “hurry up” (potty) before loading her in the van for the long trip home. As soon as the harness was removed she began kissing me in “thanks” and even whining her heartfelt gratitude!

I’ve made sure she’s had it on a little bit at home, but again as I don’t see a NEED for it right now… “don’t try to fix what ain’t broke“. Who knows? I may have a need for it one day.

People a-Worrin’ Over it!

I’m many times like my hound dog. I can “worry” over things that are new, and not completely to my liking. It may be something new that can’t be helped. So exactly what good is accomplished over worryin’ over it?

The past week we’ve been blessed with some beautiful dustings of snow in the mornings. I just love snow. I love the way it feels in my hands and under my boots. I love the way it looks as it falls in big white flakes, or swirling in the wind of a near blizzard. I love shoveling snow. (Aren’t I insane?) I like the sound the snow shovel makes when it hits, lifts and displaces the snow. I love looking behind me at the “path” I’ve created and feel a sense of accomplishment equaling the birth of a child. (OK, yeah… that’s a stretch!)  Snow doesn’t affect my vertigo and balance the way rain does. At least until this past week…

I have had some “near misses” in falls, and have had some real trouble in my balance during this week. I’ve been a little peeved about it. Peeved to the point that I’ve been a little bit snippy. When I realized I was reacting in a fairly negative way to almost everything, I tried to reflect on what the problem might be. After a little “self-discovery” of the underlying cause, I vowed to change my attitude then and there! I mean? Why worry over something that cannot be changed?

A New Normal

For me, this is just part of my “new normal”. It is normal for me to have bad “balance days”. It is normal for me not to hear well in crowded places. However, I can adapt and make necessary changes in order to live my life with passion, respect, and value. If I do all I can to be healthy, then on days I find I’m staggering around, I must accept as part of my “new normal”.

If I get angry, depressed and negative about it, I end up with family members trying to decide “what is UP with HER?” Hubby asks, “Are you PMS’ing?” (The only reason they even call it PMS is because Mad Cow Disease was taken.) How smart is it to say something like that? It did snap me back for a second however, to see what THEY were seeing. It was the impetus I needed to do some soul-searching.

I can worry 24/7 and nothing positive will come of it. On the contrary, negative thinking tends to choke out every rational thought I have. And frankly? I need to stay focused and rational about my problems! Evaluating, weighing, and finding solutions to problems is a whole lot different than worryin’ over them.

Denise Portis

© 2009 Hearing Loss Journal

Little Boy’s Voice – LOST

Published on by hearingelmo1 Comment

chris-yearbook-003

Chris Portis – 18 years old (Junior year for CCA yearbook)

This morning I emailed Chris’s yearbook picture to the mother who is in charge of the CCA yearbook.  I think it is due the 20th.  For ME, I’m cutting it kind of close being that I am normally the first one to submit things due to those in leadership for our homeschool co-op!

Perhaps I was just tired (it WAS early, and I had a lot to do today so didn’t sleep well for “worryin’ over it”), but I was a little tearful lookin’ at the “mug” of the baby of our family. I felt as though my little boy’s voice was LOST.

Chris had speech problems, and started school late as a 6-year-old.  This is ironic as his is the best voice I “hear” in my family now. He enunciates really well (at least for ME), and he has great volume and projects well. (Likely in part due to a couple of years of Debate)

I was emotional about it, for I don’t have a “little boy voice” memory of Chris. We have some videos of the kids when they were little. Now that I “hear again”, I can make out what Chris use to sound like.  But his voice is “lost” for me… I have no memory of it even after listening to tapes. Many times when I “hear” someone that I’ve known for a long time, I have a twinge in my memory. It’s like a growing pain – as my brain stretches and searches – to see if there is a memory of that person’s voice.  I don’t burn any calories hearing the voice of someone “new”.  I don’t have a memory of their voice.

When I was activated on May 13, 2005, it was the FIRST time I had ever heard Chris.  My husband and daughter chuckle at some of their memories of Chris’s voice changing. That adolescent “crack” of a maturing young man’s voice left no imprint on me – for I did not hear it.  I am unable to reminisce with them.

Adapting

I learned to really WATCH my kids when they were growing up. We’ve all been told that mom’s seems to have an extra pair of eyes in the back of their heads.  I made sure I made use of mine.  Desperate to understand and connect with my children, I made sure I WATCHED. I looked carefully at body language and facial expression.  I wanted to know how they were feeling, and wanted to understand what they were trying to convey.

I had to know that when both rushed inside talking at the same time, that I had to see AROUND the story of the squished worm. I had to see on Chris’s face how gleeful he was to have squished the worm, and how it felt.  I wanted to identify with his pleasure of this, and deciphered the look on his face to know he was eager for that “Mama high 5“!

My daughter, however, had tears in her eyes and her lip was all a-quiver.  She recited the same story.  Yet, her chest heaved with indignation, and her finger shook as she pointed it at the human I had just given a “high 5” too.  It seems the worm was squished all right, but done so on her arm!  So I had to smother a laugh, and commiserate with the little darling all the while wiping “squished worm” from her skinny little arm.

Still Adapting

I am truly blessed to be “hearing again”. However, hearing with a cochlear implant is not “perfect hearing”. I have learned to make some changes now that I am hearing through the miracle of a cochlear implant.

I hear voices great. Other sounds?  Not so great… I also don’t hear well in busy, noisy environments.  These are just two of the reasons I ended up training for a hearing assistance dog.

I have learned to watch Chloe. I pay attention to where her focus is, and try to always be aware of what she is hearing. She has these great “hound dog” ears that perk up, and her eyebrows are especially expressive as she concentrates, and alerts to the sounds around her.

chloe-tired-001

(See how tired she is after a shopping trip?)

I have changed the way I shop. Chloe does great if I run my errands in the morning, and she is more alert and “ready to work” when I remember to take care of things early in the day.  If I end up having to go do something later in the day, she still does her job… but there’s a bit of a “drag” to her step. No dog can look tired like a hound dog can! I realized it was more fair to her to do “work” early in the day. We still do things at night like movies, eating out… but she is normally able to curl up on her blanket until needed during those times.

hlaa-feb-034 Here Chloe is resting at a late morning meeting while I am giving a workshop on “HoH Valentines”.  She has learned to rest when she can, and work when it’s “time to do so”.

This morning she and I went grocery shopping. I never use to attempt going to the grocery store alone.  Talk about feeling housebound!

Today while shopping, I unsuccessfully pulled to the side to get out of the way of someone in a hurry. In order to keep Chloe from getting trampled on, I dropped my shopping list and 4 coupons.  Chloe does an “automatic retrieve” of things dropped. Within 45 seconds I had my shopping list back in hand with 4 slightly damp coupons. (Bending to the floor to pick up something flat, can cause me to GO FLAT due to Meniere’s)

We were almost finished shopping, and I noticed that Chloe’s ears were up and could even tell from watching her muzzle a low growl was erupting from her chest. I quickly shushed her but looked at where she was so intently staring. A man sat on the floor near the magazines – all sprawled out – and apparently making himself at home.  Chloe knew this was unusual, and wanted to make sure I knew he was there.  After we rounded the corner, I reached down to pat her head and said, “Good girl, Chloe”. She wagged her tail and knew I had acknowledged what she had seen and HEARD.

Adapting – My List

I believe every WISE person learns to adapt.  If you look back on your life and see some real growth, chances are you learned to adapt at some point.  Adapting is not “caving in” to other’s ideas, peer pressure, or external stimuli.  In actuality, for one to adapt one must consciously choose to make necessary changes in order to succeed.  We don’t ever adapt in order to “fail on purpose”.

I made a list of adaptations I have made in order to “succeed”. By no means an exhaustive list, this hopefully will help you come up with a list of your own.  It’s very helpful to “track changes” and record progress.

♥ Shop/run errands early so Chloe performs “best”

♥ Taught Chloe to walk in a modified heel… slightly forward as I have poor peripheral vision to the lower left

♥ Go to Costco on Monday or Tuesday mornings to avoid crowds

♥ Move my chair in church to allow Chloe room right in front of me so she doesn’t encroach on other folk’s space

♥ Follow-up with every face-to-face meeting with an email to make sure I understood

♥ Use Facebook to know how to better pray for others as I don’t talk to many people in person and NEVER by phone

♥ Watch the show “24” with enthusiasm as I’ll have to watch it anyway to be with my hubby on Monday night’s…

Give you any ideas?  Now go make your own list! (smile)

Denise Portis

© 2009 Hearing Loss Journal

“Memories… Light the Corners of my Mind…”

Published on by hearingelmo5 Comments

chloe-002

Look into these soulful brown eyes, and one can believe she remembers those she loves very easily!

“Memorieeesssss… light the corners of my mmmmind…”

Your age will likely influence whether or not you started singing along, and finished the line, “Misty, water-colored Mmmmemorieeeessss… of the way we were….”

Dogs remember

I’m always amazed at what a dog can remember.  Not so much “tricks” and obedience commands, for in truth, they remember those types of skills as the result of an owner/trainer who consistently practices and hones those skills.  I “smack my face” in shock at times, as to what a dog can remember that is NOT the result of  training. (Yeah, yeah, I know!  You’d like to smack my face for me? Grin).

Chloe constantly amazes me at being able to remember a “dog” she hasn’t seen in a really long time, and going all a-wiggle at just a glimpse of her “buddy” across the parking lot.  She was “rushed” and received a bite from a white poodle once.  She still quivers in fear at the sight of one, and it she isn’t even seeing the SAME one. Chloe has a great memory!

Wednesday, I had to rush to the grocery store to pick up a few items to last my family through the week.  I carried one of those baskets, instead of choosing a cart. I’m convinced that I need to remember to ALWAYS reach for a cart now, no matter how few items I may need.  The cart actually helps me balance some, and it also allows me to block Chloe from “oh I gotta pet you/cuz I can’t read” hands.  (Honestly, you’d think her vest said “PET ME PLEASE!”)

I dropped a coupon and was in the middle of asking Chloe to retrieve it for me, when she heard something and dropped the coupon mid-“retrieve”.  Actually it was kind of comical, because when she dropped the coupon her mouth still hung ajar!  I’ve never seen my “hound dog” surprised by what she’d heard before! I could tell right away she was hearing something, as she became very still, and her head cocked to the side.  Her ears perked up and she looked in the direction of the next aisle.

I was able to get her to focus and retrieve the coupon (with a little EFFORT), and we continued down the aisle.  She was literally “a-tremble” with excitement, and kept looking at the aisle next to us with her ears all perked up. I was kicking myself for not having a cart, but bravely rounded the corner and headed into the next aisle. I saw some ladies rounding the corner of the aisle next to us. Fortunately, they were going in the opposite direction so we were now going to have an aisle between us.  UNFORTUNATELY, Chloe didn’t like that.  She barked a high-pitch yelp/bark.  I shushed her immediately, and scolded her quietly as wouldn’t you know the end of the aisle was also nearest the cash registers and front-end employees?

I put her in “heel” and headed down the next aisle.  She continued to “hop/walk”, listening intently, and still all “a-tremble“.  I tried to listen to make sure that as we rounded the end of the aisle, those ladies were not doing so as well.  Being that I’m not a lucky person by chance, I of course came to the end of the aisle at the same time they did!  Thankfully, this time I was BETWEEN the ladies and Chloe, but she ducked her head and looked between my knees at the ladies.

One of them noticed her peeking between my kneecaps, and said, “Oh look at the beautiful dog! Look how wonderful she is!” Something about the voice made me start “thinking quickly”, but I couldn’t put it together quite yet “why”.

One of the ladies she was with said, “Oh my! She’s beautiful!  What does she do?”  She stepped closer to read her vest.  The closer she got to me, the clearer her voice became.  Chloe was attempting to sit in a nice heel position, but was just trembling from head to toe.  The lady said, “Oh she’s crying!”

Darn.  I can’t hear Chloe whimper sometimes, so I looked down and said, “Chloe… shussh!  Quiet!”  I turned to the lady standing there and said, “I’m sorry she’s not normally this way. She seems very excited to see you.”

The ladies moved closer and continued to talk to me (as they realized talking to Chloe was making her no longer SIT).  Right as one lady was explaining how thrilled she was that dogs could help a deaf person – it hit me.  I was so startled by my epiphany, I dropped my basket… on my foot! (At least it wasn’t Chloe’s!) Thankfully, I only had some boxed items in it so it wasn’t very heavy. The ladies were turning away to go, and I in a bold and desperate move, reached out and motioned to them to stop.

“Excuse me.  I love your accent, and I think my dog actually recognizes it from a trainer she had when she was young.  Can I ask where you are from?”

Although she had lived here for over a year, she and one of the ladies with her were from Vaspy, Sweden. (I’m sure I’ve spelled that wrong, but I’m spelling it like it sounded and HEY!  She had a Swedish accent so I was having trouble!).

They walked away from us to finish shopping and I stood rooted to the spot.  I think perhaps my mouth was hung ajar like Chloe’s had been after the coupon retrieve.  One of Chloe’s earlier trainers had a Scandinavian accent, although I do not know where she originally “hailed” from.  Chloe had HEARD these ladies voices, recognized the ACCENT, and thought Jolanthe was in the next aisle!

Perhaps I shouldn’t have been QUITE that surprised by the turn of events.  After all, Chloe can hear Pat’s voice (her most recent trainer) from the next room and become really excited. Heaven help us if we ever happen upon Pat in a store now…

My Ears Want to Remember

My cochlear implant is a wonderful miracle really!  I never thought I’d be hearing voices as well as I do “this side of Heaven”.  But hearing through the miracle of bionics is not hearing PERFECTLY.

Sometimes I hear things and know “something isn’t right”, but am unable to put my finger on the “what”. Take a cat’s purr for example.  If I hold one of our cats right up next to my implant I can “hear” the cat purr.  They aren’t very thrilled to be dangling from my hands and smushed up against my implant, but they will continue to purr – believe it or not!  I think part of it is that I can feel the vibration of the cat’s purr, and this aids in “conjuring up memories” of a cat’s motor.  But when I hear one of our cat’s purr, it’s a little “off”… something isn’t quite “right”.  I have a memory of a cat’s purr, but what I’m hearing is just a little bit “mechanical” compared to what I remember.  My daughter tells me all our cat’s purr differently. I suppose I’ve had a hearing loss long enough to not really quite understand how a cat’s purr can sound different.  Even more remarkable to me, is knowing my daughter claims she can tell the difference!  I just can’t quite put my brain around the fact that someone can hear THAT well!

I’m coming up on my four-year anniversary of “hearing again”.  I still hear things “for the first time” since activation. For example, this past Christmas I was shopping with my husband at Home Depot.  Around the base of one of the Christmas trees, a little miniature train chug-chugged along.  I stood there in front of God and shoppers and wept.  I could remember the sound of my older brother’s electric train set and “hearing it again”, was emotional!

I’ve spent the past summers “remembering” the sound of lawn mowers, and leaf blowers.  I’ve experienced autumns remembering how a rake sounds pulling leaves into a pile.  If it’s quiet, and the noise isn’t distorted by other background noises, I hear… and REMEMBER.

Something that makes me sad – if I let it – is not having a memory of how my kids sounded when they were little.  We’ve a few old VHS tapes, but hearing the tapes triggers no memories for me as I HAVE NONE.  I can usually cheer myself up pretty quickly, in simply recognizing the fact that I have amazing conversations with my young adult children NOW. (Reading their lips, “More juice please” was likely more endearing than “Can I have the car keys” though…)

May all of us take the time to REMEMBER.  Don’t waste energy remembering negative things (unless they taught you something).  Remember good times, good friends, and heck yeah!  GREAT DOGS!

Denise Portis

© 2009 Hearing Loss Journal

Camera Shy

Published on by hearingelmo2 Comments


The dogs were having such a great time in the snow this morning, I decided to “dash” inside to get the camera. (At least I did a “dash” for one such as I!) By the time I returned, they were still “throwing snow” at each other so I quickly turned the camera on and began taping.

Yeah. You guessed it, I’m sure. My kids tell me the camera makes a beep when it starts taping. Perhaps that was their “cue” to stop acting so darn cute! Regardless of the “how”, they did put an immediate stop to their antics.

Documented Proof

The dogs were having a great time skidding around in the snow – true. But I’ve also been trying to surreptitiously document how incredibly nutty our puppy is in the snow! He’s an “arctic dog”, and honestly I have to force the little booger inside when the temperature drops below freezing. As it is, when he is tired, he tries to find the biggest patch of snow on which to nap!

I thought I had a perfect “Kodak moment” (or maybe candid camera?) when I sneaked the camera outside. Turn the silly thing “on”, and the dogs slid to a halt. Sigh. We adopted Tyco from my trainer who also does Norwegian Elkhound rescue. I’ve also wanted to tape and document how happy Tyco is with our family, and how perfect a “match” he is for our family. Now Pat will have to take my word for it! Grin.

Invisible Disabilities

This need for “proof”… finding a viable way to show something was true above and beyond the value of my “word”, reminded me of my deafness is some ways.

I get some “flack” for wearing my hair up which allows both my hearing aid and cochlear implant to be visible. I’ve had some culturally Deaf folks give me “heck” for not only choosing a CI, but for wearing “bling” on the device as if I were proud of it – as I am! I’ve had late-deafened people question my sanity for choosing to make something visible that doesn’t need to be. Some try to “blend in” and “look like everyone else”, desperately hoping their hearing loss does not interfere with relationships, a job promotion, or other’s perceptions of their abilities.

I suppose in the beginning I was the same way. I didn’t deliberately TRY to hide my hearing aid, but my hair is long and it did the trick without my trying! However, there came a day when my hearing loss changed from “moderate” to “severe” to “profound”. Speech reading is not an exact science, and my hearing aids were no longer giving me any benefit. I was “missing things”. If people were not aware that I had a hearing loss, they did not know to get my attention prior to communicating with me. I said things at inappropriate times (and still do), or missed what the topic was that was being discussed. I decided to try to make my hearing loss more visible. I did this to help both OTHERS, and myself! I wore my hair up, and wore a magnetic badge that said, “Please Face Me. I read lips!”

After I received my cochlear implant, I decided then and there that I was going to continue to make my invisible disability – visible. I wanted “proof” that I had a hearing loss. I was tired of being misunderstood, or labeled as slow, stuck-up, or mean. My CI allows me to hear voices really well (although I still benefit from a person getting my attention first), but I still miss a lot of things to in crowds and big cavernous locations like malls, restaurants, arenas, gyms, etc. I wanted to SHOW my ears and technology, as a reminder that in many circumstances I am still deaf!

For those who don’t know me, my visible technology lets them know I hear differently. A little patience and good communication skills will insure we communicate just fine. Chloe actually “shouts” the fact that there is something different about me anyway! Everyone notices her FIRST. They “mosey over” to read her vest and THEN look up and check out my ears!

For those who DO know me well, I’ve found my “visibility” reminds them I am still deaf “in spite of” my cochlear implant. We had a fire inspector come and test the alarms at our school a couple of weeks ago. My director planted herself right next to me, as I think she was afraid of what Chloe may do. She didn’t want me “falling down” on her “watch” – smile. When the alarm went off Chloe cocked her head and listened. My director explained that there was a voice as well as the alarm. (Evidently, it explains the emergency and instructs people where to go?) I was talking to Chloe to keep her calm (as she was visibly shaking), and I kept an eye on the blinking lights of the strobe section of the alarms set in the hallway.

Later at lunch, my son found me and asked out of concern, “Gee mom! How did Chloe do during the fire alarm?”

I proudly explained how she remained calm and sat in heel during the entire thing. I told him how the director of our school came to stand next to me to “help if needed”.

Chris contemplated that a moment and then said, “It’s a good thing you wear your hair up so those of us who know you remember you still are deaf! You act so normal now!”

(So pre-implant how does that mean I behaved? Gulp!)

Denise Portis

© 2009 Hearing Loss Journal

College for a Day!

Published on by hearingelmo1 Comment

chloe-liberty

Chloe had a great time visiting a college last week.  She doesn’t mind car trips, and was pretty good in the motel as well!  (She loves elevators!)

Once on campus, I fought to keep her calm. Chloe’s weaknesses are MEN and “Teens”.  What is a college campus full of?  College guys, who all thought she was rather lovely too.  Oh my!  After a few corrections, she finally realized “Gee.  Denise means business!”  She loved the arena area (above),

because she was able to watch all the action from up high.  She had the best

seat in the house.  She totally ignores all the double-takes.

I’m so glad our church has a live band every Sunday.  The band, lights,

NOISE in the arena were not worth getting excited about, and she is

totally accustomed to my signing the songs.  Later during a meeting a

“boy group” of 3 young men came in to sing to the parents/visitors.

They came and crooned literally within a yard of her.  She slept

right through it.  I’m so glad this type of atmosphere is normal

for her!

Chloe was mildly amused when an admissions counselor asked

me if I was planning on transferring to the university.

I was not so amused.  (My husband and daughter were snickering,

however!)

Ah college… being there almost made me “miss it”!

Denise Portis

© 2009 Hearing Loss Journal

Nightmare Trip

Published on by hearingelmo3 Comments

chloe-home-from-libery

Trip home:  Chloe kept making sure Mom was ok…

Kyersten Portis often writes for Hearing Elmo. She has only known “Mom” (Denise) as a late-deafened adult. Hearing loss affects the entire family unit, and my disability has made it possible that all members of my family are incredibly “ABLE”.

The scene was already something from a horror movie. It was late at night on HWY 501, and we didn’t know where we were going.  The road was out in the middle of nowhere. The mountains loomed around us and the road showed little sign of life apart from a few abandoned looking buildings. Off in the darkness one could see the dark emptiness of a valley. The road was winding, narrow, and the top speed limit was 20 mph in most places.  Your mind could conjure up pictures of Ax Murderers wandering along the road to murder and terrify… and umm – AX people.

We didn’t run into any Ax Murderers. Still, it was quite a scary trip.

We were traveling to visit a college I’m interested in transferring too in Virginia. It was up in the mountains. As the road became increasingly curvy, Mom became increasingly car sick.

“Why are we here? I have a balance disorder! I feel sick! I hate you, Terry,” she moaned from the backseat where she sat with Chloe. Dad at first defended himself, but then meekly apologized as she continued to pipe up at rather random moments that she “hated him”. (He said later she said the same thing when she was giving birth to me, so he figured she was just in pain and didn’t mean it).

Poor Mom. I offered to switch seats with her as I was in the front, but she refused. She finally started crying. After a couple of minutes, her crying stopped. I was relieved and glad she was feeling braver. I glanced into the backseat…

“Oh my gosh! She passed out!” I gasped. Dad flinched but kept driving. What could we do? We couldn’t stop, no civilization was in sight. (Besides, the Ax Murderers are out there!) Mom came back to consciousness finally.

She moaned, and asked if we were there yet (to which we lied and said, “almost”).  She asked Dad to turn out the headlights. When he said he couldn’t, she told him she hated him, and asked for me to help her find her cochlear implant (which was actually attached to her head) and passed out again. This time she hit the window. I yelped for Dad to pull over. I crawled to the back to where she was at poked her gently. Chloe came up to bark at shadows (perhaps Ax Murderers) and it seemed to bring Mom back to consciousness.  She asked why Chloe was barking and then basically repeated what she had said the first time she passed out. So… I sat in the back and held Mom up as she passed out another few times. I tell you what… there is nothing quite as scary as seeing your mom pass in and out of consciousness. I held my hand up to feel her breathing in and out, worried about how still she was.

We finally made it to our hotel. And Mom? Mom didn’t recall any of the events and felt bad about telling her husband she hated him a 100 times.

I was definitely thanking God she was okay and amused more than anything. She felt dizzy the rest of the night. I listened worriedly at the bathroom door when she took a shower, waiting for a “thunk” if she passed out. But she seemed to sleep it off and felt better the next day and was good on the way home.(We took a different route, and it was DAYLIGHT!)

Actually, the whole car trip could be seen as “life with someone with a disability“. As life became twisted and dark, Mom felt isolated from the world. But even in her isolation, her family was there. She was isolated from civilization, but we were there in the space (aka, car) with her. She may not have wanted to accept our help, but we were there for her. We held her up, encouraged her, and traveled to the end of the road with her. With God’s help, we brought her out of the depression and darkness and into contentment. Dad didn’t let her push him away, even when she said she hated him. He tried to fix it and carry her to safety. Chloe, didn’t know was going on honestly, but barked at the shadows that crept upon Mom. She stood over her in the dark, worried and trying to help. Many times Chloe helps chase away any gloom that Mom feels just because of her unconditional doggie love. I helped support her, and Chris prayed from home after getting a hysterical text from ME. Mom endured. And we arrived at the end of the road, to peace. We knew there would be other trips and roads, but we enjoyed the oasis of peace and look forward with the knowledge we’ll be okay. God is always there with us. And we always have each other =)

Kyersten Portis

(10 days shy of 19-years-old)    kyersten-brown-0021

Denise Portis

©2009 Hearing Loss Journal