A Little TOO Helpful!

Chloe and I can be found in Wal-mart on most Tuesday mornings. A friend from my home church in North Carolina (thanks Kim!) told me that the best time to go to Wal-mart was on Tuesday mornings. As I rarely stand in line to wait AT ALL, and as the aisles are usually clear of shoppers, she was exactly right. I save a lot of money at Wal-mart, so it is worth my while to even get my groceries there as one of the two Wal-marts in Frederick is a “super” Wal-mart.

This morning the weather was gorgeous! Not a cloud in sight, so I didn’t even bother bringing my cane. Not only was I not wobbly today, but I had a spring in my step! (Well… a spring for ME!) We hadn’t been shopping very long when we approached an elderly lady pushing her cart and shopping. She asked me if she could help me find something.

I took a good look at her and noted that she wasn’t a Wal-mart employee.

“Erm… No thank you!” I replied. “I’m finding everything I need”.

What do you need dear, let me help you!” she insisted.

She even turned her cart around so that she was now headed in the SAME direction as I was. I stammered, “Well … umm… I’m looking for golden raisens. They come in a big yellow box”. She spotted them for me and placed them in my cart.

“What else do you need, dear?” she asked nicely but firmly.

“Really, I’m fine. I appreciate your help,” I said a little nervous now. I moved on down the aisle and the little lady stayed right beside me with her own cart.

I’m really not a DUMB person, but it took me until the third aisle of us shopping side-by-side that I finally realized something. She had just handed my list back to me after noting something I needed and bringing it to where I was. She thought I had vision difficulties! I quickly put together that having Chloe by my side meant she thought that Chloe was my seeing eye dog!

Now hiding a big smile, I finally tapped her and said, “Ma’am? I’m not blind. I have a hearing loss! I’m a late-deafened adult and this is my hearing assistance/balance assist dog”, I said as I pointed to Chloe’s vest.

She paused a moment, read the vest more carefully, and then looked at me with a big beaming smile and said, “Oh! I can’t hear either!”

Too helpful?

This little lady certainly didn’t mean to be a “pain”, but I had tried to explain that I didn’t need her help a couple of times. Without being almost rude… I didn’t know how to get rid of her!

She really DID mean well. She was trying to help. She thought I was a young woman (compared to HER) who couldn’t see well and was trying to shop on my own. She was being helpful. It wasn’t until I realized what she thought my limitations were, that I was able to explain exactly what I could and could NOT do.

Many times a person with a disability may feel frustration building up inside because of how HELPFUL everyone is! It is important to find out exactly what it is that a person with a disability may need from you – if anything. I attend Fidos For Freedom a couple of times a month with Chloe for training. I work side-by-side with people who have many different kinds of disabilities. Everyone is different. Even those of us with hearing loss vary in how our disability impacts our lives. I am more likely to need you to offer me a steady hand when getting up off the floor, than I am for you to repeat something that I missed. Our training floor is looped, and I hear really well in spite of the huge training floor. Other hard-of-hearing people or late-deafened people may not hear as well as I do, but are more steady on their feet. Chloe actually helps me with balance-related tasks almost as much as she helps me with sounds I cannot hear or “place directionally”.

Some of the clients use walkers, wheelchairs, or power scooters. Some have canes that they use all the time – not part-time like I do! Yet, each of them have varying degrees of ability. After being matched at Fidos For Freedom, the trainers work hard to have YOUR dog learn specific tasks that will help YOU. So I have learned to not “help” unless I have already established a relationship with someone and I know exactly how I might best help them.

One thing I have learned about people with disabilities… they don’t want to be treated like they are disabled. They usually try to maximize their ABILITIES so that they can live a good life in spite of a disability.

How Can I Help?

Having two young adult kids is another good reason to learn to ASK how one might help. Try not to assume what someone else needs. Simply ask. If they want or need your help, they are given the chance to take control of their own needs by requesting specific help for specific tasks. My son? Yeah, he’ll let me do his laundry until he leaves home. Because I LOVE doing laundry (I realize I’m strange), I don’t mind doing this. However, I have learned to ASK if one of my kids needs my assistance. Because I respect them and have shown them that I trust them to let me know if they need something, they have learned to ask for help when they need it.

We should take care about not being to prideful to ask for assistance when needed too. That can be harder for some than others!

What type of things do people try to help you with even though you may not need it?

What types of things do you have trouble ASKING for help with doing?

Denise Portis

© 2010 Personal Hearing Loss Journal

“Hearing Again” Woman #7

FOR TODAY… February 26, 2010

Outside my window…

Oh my! The wind is really strong today! The trees and bushes are whipping about as if in a dance competition. Right now, the bushes are winning hands down.

About 70% of the snow has melted off. Our once spectacular drifts are now mere 2-3 foot pitiful, sloshy, masses of dirty snow. I hate it when all the beautiful “white stuff” no longer IS.

Lots of traffic in the cul-de-sac this morning. Why? It’s a cul-de-sac, not a through street!

I am thinking…

About my little sister and her family. It’s so tough being unemployed. We were there only two short years ago. Other than a health crisis, I’m not sure anything is more stressful on what is normally a solid family unit.

I am hearing…

… the result of all that wind. The trees may be dancing a merry jig in an attempt at “one-upping” the bushes, but the noise they are making sound like bees. Yeah, I know strange. But in trying to discover a way to describe the sound I’m hearing, I can only come up with the very angry noise of bees.

I am thankful for…

… the fact we don’t have a lot of bees around here. I’m allergic. Those epi-pen shots and subsequent ER visit are never very much fun. I think it’s a RIOT how these prompting questions sometimes get me off on a tangent!

Seriously, today I am extra thankful for steady employment for hubby. He pays our bills (barely), and it is steady enjoyable work for him.

I am wearing…

A tan sweatsuit, tennis shoes and a cream-colored turtleneck underneath. It’s cold! I’m also wearing glasses, which for me is WEIRD. I have very itchy eyes, and opted to do without the contacts today. I think the itchy eyes are from the increased usage of our furnace making the air extremely dry. My skin is dry as well… where did I put that Neutrogena Skin care cream?

A Cochlear Implant

… is wonderful when you want to hear the evidence of what your eyes see in that WIND.

I am remembering…

… the fact that 4 years and 9 months ago, I couldn’t hear the sounds coming from things my eyes could see. Not blowing, dancing trees and bushes, nor people’s words coming from their mouths, the clickity-click of my keyboard, the whir of the ceiling fan overhead… and so much more!

I am going…

… to Fidos For Freedom tomorrow and bonus – – Kyersten is off so she can come with me! I really enjoy these trips to and from the training center. She loves helping out there and working “spare dogs”, and it is something I am glad to share with her. She’ll be gone this fall, and I’ll certainly miss this one-on-one time with her. Sniff.

I need to…

Fold a load of towels, remind my son to vacuum, and finish a research paper for my class.

A disability is NOT…

… always easy. Case in point, my Meniere’s disease/rainy weather caught me by surprise this week. After a couple of unexpected falls and resulting bruises, I allowed myself to feel sorry for myself for 5 minutes. I set the timer, wailed, Chloe let me know when the timer went off, wiped my tears and blew my nose… and GOT ON WITH LIFE. Poor Chloe isn’t sure what to do when an alert is suppose to happen but I’m wailing into my pillow. Her normal, eager bump/kisses are a tentative tap with a paw. I look up and she wags her tail cautiously. Poor thing isn’t use to my pity parties even after being with me as long as she has. Maybe that means I don’t have them very often?

I am currently reading…

Still finishing up “The Reason for God: Belief in an Age of Skepticism”. It’s a tough read I think. His logic and my logic don’t follow the same course. It’s more than the fact that he’s a man and I’m… not. It’s a good book… just tough to plow through. Terry bought me a surprise book though! That alone is impetus for me to finish up the other book. (For… ya know I cannot read two books at once – just not possible!). He purchased John Ortberg’s “The ME I want to be: Becoming God’s best version of you”. He is my favorite author and I have all of his books. I can’t wait to get started. When I read something he wrote… I change. Morphing into something a little better, finer, and more pleasing to God. I just love his writing style. (FUNNY!)

I am hoping…

… for so many things I can’t list them here. Many are constant prayer requests, some are simple quick wishes like a cup of hot cocoa!

From the kitchen…

Tonight we are having steak, biscuits and asparagus. Kyersten works tonight and is not crazy about red meat. I take advantage of Friday nights to have our red meat each week. The guys feel like they’ll perish without it. (rolls eyes)

Around the house…

… it will look pretty good around here once my son vacuums!

One of my favorite things…

… is Earl Grey tea. I have a pot brewing in the kitchen right now. I can’t wait to get to it!

My husband…

… is not resting well at night. He resembles Darth Vader as it is with his sleep apnea gear on his face at night, but he’s been twitching and scrambling about the bed covers. I’m deaf (without my cochlear implant), but I’m not dead. He practically tossed me out of the bed last night at one point. I smacked his arm and told him to cut it out. I think he is having nightmares. I need to talk to him… BEFORE we turn the lights out tonight.

My daughter…

… doesn’t eat enough to keep a mouse alive. Ok, alright! Perhaps she eats plenty to keep a mouse alive… sigh. Yeah, she eats enough to keep a whole FAMILY of mice alive, but she doesn’t eat enough to satisfy MOM. She’s such a tiny little thing, and doesn’t eat the most healthy choices when she does choose to eat. I may have to start fussing at her again. Her clothes are loose and I’m going bananas sitting across from her at family meals seeing her 1/2 empty plate.

My son…

… is not gonna be happy when MOM comes stomping downstairs with an ultimatum about the vacuuming.

My assistance dog…

… is asleep in a sun patch. She and Tyco (our Norwegian Elkhound family dog) have been growling at the howling wind.

A picture to share from this week…

My new book!

Little Bit of Heaven

Chloe and I were at Wal-mart this morning. Actually we are at Wal-mart every Tuesday morning. We are as predictable as a sunrise. About a year ago someone told me that Tuesday morning was the time to go to Wal-mart because you never had to wait in line. Since I found out that person knew what they were talking about, that is when I go each week. I had stopped going actually, because the lines, crowd and NOISE were just unbearable no matter how much money I saved. As it turns out, Tuesday morning is the time to go to Wally World! Now I save the family money in our grocery/necessities each week by going again.

Chloe does not mind going because there is stuff to pick up all over the place! She loves helping. Her tail wags the entire time we are there. As I parked, I noticed out front one of those small buses that many retirement centers use. I took note of the large crowd of seniors throughout Wal-mart. In the laundry section, I came upon a couple who looked to be about 70 or so. The lady was in a wheelchair. She made “kissy noises” towards Chloe. Well to a dog, that “kissy noise” means come over here… in any language evidently. Chloe couldn’t resist and I didn’t correct her.

I was a little nervous because the lady was very frail, and Chloe moved in closer to rest her front paws on the side of the chair. The lady put her arms around her and talked to her. Her hands were bent with arthritis, yet she stroked Chloe so softly. She started crying, which made Chloe clean her face of course. I apologized and asked her if she wanted me to move Chloe.

She said, “Ah no! This is my little bit of Heaven today!” So Chloe gave her kisses and the lady just cried and talked to her for about 5 minutes. I looked up to see what the reaction of doting hubby was, and he had big tears in his eyes too. He said, “We had an Irish setter for years. Your dog’s color is very similar.” Chloe went over to let him get in on the lovin’, and that is when he noticed what her vest said.

“Oh my! Honey? Look, we aren’t suppose to be petting her!”

I replied, “Hey! You absolutely made her day. I don’t care if you pet her”. How could I deny a little bit of heaven after all?

Little Effort – Big Gain… for Someone

You know something that took maybe ten minutes of my time, really ended up making someone’s day. Sometimes I hear about a need through my church, or the “grapevine” via Facebook, email, or my blog. I may not be able to meet that need specifically, but usually I can always do something!

Yesterday a gal who use to go to my church posted something on her Facebook. She lives in South Carolina now with her husband, but she is pretty active on her Facebook so we can all keep in touch. She was telling us how she and her husband saw a homeless man and were prompted to help him. They went to a Sam’s and bought some food and bottled water and brought it back for him. She said, “I wish we could have done more!”

Yet we have no idea what “little bit” may mean in the life of someone. In that moment in time, that “little bit” may have been “a bit of Heaven”. Who knows what seeds of kindness planted in the life of a homeless man may mean in the days and weeks to come? Some people are pretty cynical about the homeless. I have been myself on occasion. Sometimes you may not be ABLE to help. But isn’t it funny how when we are prompted to “do something”, it is usually when we are able to do something to help?

My daughter was telling me over Google Talk today about a friend she took to Taco Bell. Her friend needed some “Kyersten time” and Taco Bell is cheap so works out well for college students trying to do “a little bit”. It was a small thing… didn’t take long… yet friendships can blossom and grow even from the dubious amount of nutrition in a bean burrito with extra sauce.

Even YOU can…

Sometimes people with disabilities get it into their heads that they aren’t “able” at all. That’s a load of hogwash actually. I’ve never seen a load of hogwash, but I’m reasonably certain it looks just like that excuse that people with disabilities aren’t “able”! I know so many people with disabilities who happen to be VERY able. They volunteer in their communities, they reach out to others, they make a difference!

Sometimes people use the excuse that they are financially strapped so can’t “make that difference”. You do not have to have a lot of money to be that “little bit” for someone else. It could be an email, card, letter or phone call to just let someone know you care! During our big snow storms these past two weeks, it has been very heart warming to see neighbors who rarely talk out helping each other clear driveways and sidewalks. I like to think it had very little to do with a huge underground effort to get the kids back in school. People were TALKING. Smiling! BONDING… over huge piles of snow!

Wouldn’t the world be a nicer place if all of us tried to be that “little bit” to someone at least once a day? Don’t neglect being that “little bit” for those closest to you as well! Why leave them out? I’d rather be used as a “little bit of heaven” in someone’s life than to be the alternative. Wouldn’t you?

Matthew 25: 35-40

For I was hungry and you gave me food, I was thirsty and you gave me drink, I was a stranger and you welcomed me, 36 I was naked and you clothed me, I was sick and you visited me,I was in prison and you came to me.’ 37 Then the righteous will answer him, saying, ‘Lord, when did we see you hungry and feed you, or thirsty and give you drink? 38 And when did we see you a stranger and welcome you, or naked and clothe you? 39 And when did we see you sick or in prison and visit you?’ 40 And the King will answer them, ‘Truly, I say to you, as you did it to one of the least of these my brothers, you did it to me.’

Denise Portis

©2010 Personal Hearing Loss Journal

Found a picture of hogwash! So now…

Now we ALL know!

Red Flag

I have little “red flags” in my life… or warning bells if you like! Really, we all need to have them, for they are excellent opportunities for reflection, brain-storming, and goal-setting.

Well a little “red flag” waved like mad right in my line of vision this week. When I stopped to heed my little “self-warning”, I was even able to trace it back to when it started. You see, I was developing a bad attitude! Not a bad attitude about any one person in particular, but towards a group of people. A bias, really! It all started when I went shopping at Wal-mart last Tuesday.

Oh Bruuuuther!

Chloe has a ball in Wal-mart. This is a good thing, for her enthusiasm is contagious and – frankly? Wal-mart is not one of my favorite places to go, so I can use a little infectious enthusiasm about the money-saving, weekly task! You see? There are a LOT of things to pick up off the floor at Wal-mart.

Chloe does an “automatic retrieve”. Granted, sometimes this is a real pain! For example, when you are in a store that is notorious for having things all over the floor, Chloe is stopping every few feet to hand me something! An automatic retrieve is when Chloe sees something that I’ve dropped, she automatically and immediately fetches it and brings it to me. She also does directed retrieves, which means she will fetch things I point at, or identify with words she recognizes. Having Meniere’s disease insures there are days that having to reach all the way to the floor, means I’ll also be sprawled out IN IT. Chloe keeps that from happening. If items are just laying around, Chloe really shouldn’t go and pick it up as it wasn’t something I dropped (automatic retrieve), nor is it something I’ve asked her to do (directed retrieve). However, coupons and bits of plastic have a tendency to “be stirred up, move, and re-land” as a shopping cart goes by. Since Wal-mart has shopping carts… everywhere… Chloe thinks every new thing that lands in front of her is something I need. For awhile I was telling her “phoeey” or “drop it”. This hurt her feelings. (She’s very sensitive). I didn’t want to break her solid retrieve commands, so I play along as she gets such a kick out of it and as it is such good practice.

Last Tuesday we were in the baking section of Wal-mart and I was looking for pancake mixes. A man and woman walked by me from behind. The man said “Oh bruuuuther!” very loudly as he walked by me. I looked up to see what he was talking about, just in time to see him tap his wife’s arm and point to Chloe and again explain, “Oh bruuuuther! Can you believe it? What will they think of next?” The MEANNESS pouring off of him completely shut my mouth. (Rare thing, THAT, believe me!)

I’m pretty sure my mouth dropped open. The sarcasm and disdain in his voice were very apparent. My mind raced with what I wanted to say, and how I wanted to explain that for ME, Chloe’s partnership was invaluable. I stood there trying to think of what to say, and how to say it… yet I was angry and hurt. He rolled his eyes and again looked at his wife. She said what I WANTED too… “Just shut-up Chuck!

The entire experience probably took 2-3 minutes of my time. Yet I stood there, rooted to the spot, for at least twice that long.

One Bozo ≠ Everyone Else

I’m not sure why I pondered and perseverated on that as long as I did. Have you ever had something happen before where you spent a great deal of time thinking about what you WISH you would have said or done? Little by little, I could feel my attitude changing.

I have a red flag that I’ve set up in my mind to identify when I get an “us” versus “them” mentality. The “us” is any individual, including myself, who lives with a disability of any kind. The “them” are people who do not have a disability. When I start thinking or saying things like the following… I know I need to stop. That red flag will be

waving

like

crazy:

1. Well, you couldn’t understand because you have normal hearing.

2. You don’t know how I feel… you can’t! You don’t fall all day long and run into things!

3. You are a HEARING person. (Like that is a cut-down of some kind!)

4. If you could live one day in my shoes…

Those kind of thought processes tend to foster one major PITY PARTY. I can feel myself start to feel resentful. It can get ugly pretty quickly left unchecked. In this case… I let one BOZO represent everyone else I know. Truthfully, those with extreme prejudices are the exception, not the rule.

Battling a Negative Pattern of Thinking

So other than seeing that red flag, and recognizing my faulty thinking… what can I do? Very likely every person has a way to battle negative thinking that works for THEM. For me, I may do any of the following:

1. Count my blessings with deliberation and certainty.

2. Remind myself why ALL biases are wrong.

3. Make a list of all the people in my life who “get it” and do not have disabilities.

4. Hug and groom my dog, Chloe.

5. Listen to positive, up-beat music.

6. Do something for someone else for no particular reason.

7. If it would be constructive, confront an offender with grace, respect and firmness.

Red Flags are Good Things!

Do you have red flags in your life? These are necessary self-warnings that all of us should have! What are some red flags that you have and pay attention to in your life? Some of my own:

1. Spiritually: Does my walk TALK, louder than my talk, talks? Am I daily checking in with God through prayer and reading my Bible? Do I seek to be a blessing to others? Does that start at HOME?

2. Physically: Have a walked at least 4 days this week? Am I watching what I eat? Am I taking my blood pressure medication each day?

3. Emotionally: What have I done for ME this week to just relax and unwind? Do I need an attitude adjustment? Am I living in peace or allowing anxiety to wreck havoc?

4. Mentally: Am I growing? What am I learning in school? Am I giving my best to my team and individual assignments? Are these things helping me reach my goals?

Denise Portis

© 2010 Personal Hearing Loss Journal


“Hearing Again” Woman #5

FOR TODAY… February 5, 2010

Outside my window…

It’s snowing! This is “the big un” according to the local and national meteorologists. We could get anywhere from 26 to 32 inches. I can’t wait! Right now it is just drifting down pretty calmly, but more than what one could call “flurries”. The neighborhood was quiet until people starting rushing home from work about an hour ago. They park, stick the windshield wipers up… and then grab the bag of bread and milk that they just collected from the grocery store after knocking down the lady with the cane for that last loaf of Wonder bread.

I am thinking…

… about how much I enjoy snow. I love shoveling the stuff and I get a hard time about that. There is something pretty magical about the sound of a metal snow shovel slicing through the snow, lifting, and tossing it on to the nearest drift. I love looking behind me to see the path I’ve cut across the driveway, back deck, or sidewalk. Aren’t I strange?

I am hearing…

… the bathroom fan running. Hubby didn’t go to work with the incoming blizzard. He did run to the gym, however, and came home to shower here. That means I have a load of laundry to do by now.

I am thankful for…

… my godly parents. Got a “Skype” (webcam) phone call from my mother this morning. Daddy is having some health issues again which could be potentially serious. I “hear” the worry in both their voices, but I’m EVER SO THANKFUL they both love and trust the Lord. Praying for them makes them seem closer than they really are. I’m guessing they are about 16 hours from here now that they live in central Florida.

I am wearing…

… blue jeans, black turtle-neck, gray sweatshirt, thick socks, hiking boots, and February bling on my cochlear implant.

A Cochlear Implant…

… is sometimes mistaken for a bluetooth phone. Go figure. Side by side, they don’t look a thing alike!

I am remembering…

… what it was like to be in labor with my oldest – my daughter Kyersten – twenty years ago today. It wasn’t “pleasant”, which is why remembering makes my heart accelerate and blood pressure go up. I was determined to have her “naturally” with no drugs. (Youth = stupidity). I had “back labor” and was practically screaming by the time she finally crowned. Happy birthday Kyersten!

I am going…

… absolutely NO WHERE. Blizzard coming… ‘member? We are hunkering down for a weekend stuck in the house. Movies, check. Popcorn, check. Books, check. School work to do, check.

I need to…

… get started on that school work I alluded too. I have a paper due Monday. It’s only 1400 words, but still! I need to at least get my research out of the way today. I’m taking a 500 level “Multicultural Psychology” class this term. Basically it’s how to be politically correct as a psychologist. (rolls eyes)

A disability is NOT…

… a culture. At least not defined by most psychologists. There is a new group however, explaining that a culture can be a group of people who share a common disability. Funny thing that word disability. It gets some folk’s hackles up, while others embrace it a little too fondly.

I am currently reading…

… a textbook written by Hall entitled, “Multicultural Psychology” and some more deep thoughts by William Bennett.

I am hoping…

… for as much snow as they are calling for!

From the kitchen…

… I think we will have sandwiches and chips for supper. I was going to have left over “NC style BBQ”, but folks warmed up a bunch at lunch. I don’t think I have enough to serve for supper now. Oh well… I love the vinegar-based BBQ recipe I found for my slow cooker. I’ve fixed it twice in two weeks now.

Around the house…

… I need to remind Chris that he was suppose to vacuum on Wednesday. I can look around and see that it did NOT get done. I have to remind my 19 year old from time to time that I am DEAF – not BLIND.

One of my favorite things…

… is doing laundry. I have a load in the dryer, and a load in the washer waiting to be transferred. Best perk of laundry is folding clothes fresh from the dryer. LOVE IT!

My husband…

… is puttering around his office. I just saw him pull the attic stairs down and move Ebony’s pink crate up in the attic. We miss her. 😦

My daughter…

… is headed out to Starbuck’s. She has cabin fever and hasn’t even become snowbound yet. It’s COLD and she has to go run to Starbuck’s to get a frappuccino! Strange child…

My son…

… is doing homework. Or so he tells me when I “IM’d” him to remind him about the vacuuming.

My assistance dog…

… is curled up in her bed beside me here in my office. She’s not nearly so excited about the snow falling as my Norwegian Elkhound.

A picture to share from this week…

My February “bling”:

Denise Portis

© 2010 Personal Hearing Loss Journal

Looking Back

Are you gonna smile for our Christmas picture?

I love Christmas. Yet my love for Christmas has changed for all the right reasons. With age comes an appreciation for life and the “Reason for the season”. However, immediately following Christmas there is an anticipation for the closure of yet another year.

For me, that might mean psyching myself up to begin writing 2010 on written documents. I always hope I’ll not even hesitate with the right date by at least… erm… June. It’s a time of preparing resolutions, many of which are repeats. That’s sobering in and of itself!

It’s also a time for reflection, however. I like to look back on a year and really dissect it. Some folks thing this extremely odd, or perhaps even unhealthy. Certainly it can be unhealthy if your reflection becomes a yearning and stubborn refusal to move on with life. It can be challenging when that reflection encompasses a year that was really difficult. For me… difficulty is defined by what kind of emotional, mental and spiritual year it was.

Defining “Difficult”

At some point in my life, I may have thought that physical problems characterized a difficult year. However, I’ve experienced brain injury, high risk pregnancies, acquired disabilities and gray hair. Perhaps my own perspective would be different had I experienced living with a terminal illness. Likely, there are those who have extremely different opinions about what constitutes a “tough year” because of such illnesses.

For now, “difficult” includes all of those emotional, mental and spiritual problems that have me sending S.O.S. prayers. Perhaps because I’m a wife and mother, it is much harder for me to deal with difficulties when they happen to people I care about. I suppose there is some truth to the saying that God gives grace to the individual facing the trial. My loved ones “going through it” eventual find the strength to push through and grow. I’m often left feeling and re-living the trauma of their pain long after they have moved on with life.

Having experienced just such a year, one where those I loved experienced the kind of struggles, trials and heartaches that I wouldn’t wish on my worst enemy, I recognize a tiny step of growth.

Own What is Yours

It may be because my children are no longer small and the fact that they are young adults, that I can entrust them to God more easily than I have in the past. Sure… it may be because I’ve finally developed that good habit and it just happens to coincide with their age! I think it more has to do with realizing at some point that even hard years are good for them… just as they were good for me.

When I began losing my hearing after the birth of my son at the age of 25, it was gradual enough that I was able to pretend it wasn’t happening for a good number of years. It wasn’t until I was much closer to 30 that I realized I needed to go see my doctor and then an audiologist regarding my hearing and balance. Over the following decade, I would learn that the emotional toll of hearing loss was much more difficult to work through that actually learning to live with the hearing loss itself. I suppose the most important thing I learned was that my husband, my mother, and my friends were incapable of helping me learn to live with hearing loss. Certainly their support eventually helped me learn to “stand on my own two feet”. Much like a baby pulling itself up on wobbly, inexperienced legs, I had to to take that first step and then another. My “support” network was there to cheer and clap and catch me should they see me falling. But learning to “walk” required that I take that first step. Ultimately, I learned that there was only One who would not let me down. People are… well – they’re people! Human, and fallible in spite of good intentions and commitment! I honestly do not know how I would have ever lived through learning to live in a world gone “silent” if not for my relationship with God. This relationship was not dependent on the ability to communicate using ears.

I believe that every person may grow and thrive if they learn to “own what is their own”. I run into (both physically and virtually) many different people who are going through many different kinds of things. What has been hard for me as a mother is to recognize that my own children must do the same. I can remain supportive and pray for them. I can offer advice (sometimes solicited but usually NOT). I can be there to extend a helping hand when they fall… because they will. Looking back on 2009, I could allow myself to be overcome with sorrow at the pain, suffering and heartache one of my children has experienced. They are still dealing with the effects of these difficulties. And yet… they ARE dealing with it.

Be an Example… the Good Kind

You never know who may be watching. It could be your child, spouse or significant other. The ‘watcher’ may be a co-worker, a family member or a neighbor. It may be that cashier you see every week at the grocery store. It may be someone you share an elevator with every single work day. What exactly do I want people to see? What remains the best influence, the best example? Handling life in a good way, or belly-achin’ about how unfair it all can be?

I lay in the wet yard this past Wednesday staring at the sky. I could feel the cold, melted snow seeping into my clothing and hair. I lay there waiting for the world to stop spinning and closed my eyes to shorten that “wait”. Chloe licked my face once every minute or so, and I opened an eye to look at her. With a wag of her tail she placed a paw on my chest and looked into my face as if to say, “Hey Denise! Why are we laying in the mud? It’s OK that we are, but I just wanted to make sure you haven’t given me a command that I missed. You ended up here in a hurry, and I may have missed something?

I took the five long minutes that it took to eventually sit up and then pull myself into a wobbly stand. Chloe continued to wag her tail and did a “play bow“, enticing me to take a dive into the puddle again if it was really something I wanted to do. By this point, I was crying and feeling awfully sorry for myself. I tucked my cochlear implant into my pocket and made a bee-line for the back door and my “Dry ‘n Store”. The kids both gone to work and my hubby working in his office, I was able to hop into the shower at 6 PM without anyone the wiser. With clean pajamas I knocked on hubby’s office door, pointed to my head and said, “I’m deaf“, just to inform him he was going to have to use Chloe should he need me. I stomped into the QUIET ROOM (so named in order to remind the entire family that no electronics, music, or noise are allowed in this safe and quiet “haven”) and eased myself into a chair to fume.

I’m proud to say that my pity party was at least short-lived. I don’t like falling, but falling is just as much a part of my life as hearing loss is. I deal with it, because it is mine to deal with!

2009 wasn’t easy, but I survived. Can you “look back” and say the same? Is there at least some measurable growth in the way you respond to life and it’s challenges? As I “look back”, there are plenty of times I can say, “Heck! I should have done better!” Even those “times” are growth… for I recognize my mistakes and willingness to do better. The book of Haggai is short, yet contains the word “consider” five times. One can easily substitute the word “reflect” and the meaning is not changed at all.

Let us all consider our ways, and let us reflect. By doing so we can enter 2010 with a determination and resolve that is much stronger than a resolution. My earnest prayer?

Lord? Help me DEAL WITH IT!

Denise Portis

© 2009 Hearing Loss Journal

P.S. “Hearing Elmo” is looking for guest writers for 2010. If you have a connection to hearing loss, Meniere’s disease, or assistance dogs, and would like to write a “guest article”, please email me at denise.portis@gmail.com and type “Hearing Elmo” in the subject line. “Hearing Elmo” is looking for people with different perspectives and even like-minded individuals to encourage others through their own experiences. Happy New Year!

Ingrained Habits

Chloe and Denise at Fidos For Freedom on the training floor…

Being a hearing assistance dog, Chloe has been taught to do automatic retrieves in case I drop something I do not hear. She loves to do directed retrieves as well, but the automatic retrieve is something that is more ingrained for her. It is literally automatic… like 2nd nature, and most definitely an ingrained habit.

This week Chloe and I are testing 3rd graders for CCA with a national standardized test. Want to know something I discovered? Third grade students drop a lot of stuff.

Frequently.

Randomly.

And never notice.

Chloe DOES notice. Even though I am not the one who dropped it, her first impulse is to even break a command like a down/stay and go and get it for me. During the first test, I had to remind her a couple of times to stay put out of harm’s way and let the child get the pencil, paper, or water bottle lid that fell to the floor under the desk.

It was really tough for her. Automatic retrieves are a default setting for her. On the trip home, I thought about my morning and Chloe’s responses. What is MY default setting? What ingrained habits do I have?

Self-evaluation

Geesh. Don’t you hate reflective moods? (GRIN) It was a 45 minute trip home, so I had nothing better to do. Stuck in traffic on the way into town this morning meant I had already listened to two full hours of Christmas music. I couldn’t take anymore of that! So I decided to reflect!

Ya know? I’m not proud of all of my default settings. Some of them are rather negative.

1. As long as I’ve been a “late-deafened” adult, or hard-of-hearing for those of you who prefer that, you’d think I’d be use to people getting frustrated at having to repeat things for me from time to time. If I get a long-suffering sigh, I’m usually ok. No reaction and I realize it really CAN be tough to have to repeat something so often… especially if we are in a noisy environment. If I get an eye-roll or condescending attitude, however, I want to strangle the life out of someone! And well? Murder is still a crime in the U.S. (sigh). So, yeah! I’ve got to work on that default setting. There is an operational procedure that is much more beneficial to me. Patience, understanding, empathy, and even forgiveness may be some things I need to make sure are activated when someone’s response to repeating themselves is not what I’d hope.

2. When I’m tired, I’m a monster and don’t care. Ask my family. A cranky Denise is a mean, critical and onery Denise. I try so hard not to be, and now that I’m in my 40’s I certainly succeed some. But… ideally? I need to make sure I get enough rest. I plan my sleep schedule like it’s something important. Now… I don’t exactly have it entered on my Google calendar, but folks? I make sure I get plenty of rest. I try to make sure I always get at least eight hours of sleep a night. And you know what? As a person with a hearing loss, I have learned that if I can get nine hours of sleep I am really at my best. Hearing takes work. At the end of a really long day of conversations, meetings, and communication… my brain feels like mush. If I’m not getting enough rest, I get to that “mush” place much earlier in the evening.

3. The sky is NOT falling. I’m a bit of a pessimist. Some who know me well might argue that I’m a wee bit more than a “bit” of a pessimist. I work on that a great deal. I consider it a very poor default setting. When something bad happens, I tend to believe that something else bad is going to happen in addition to that first “chunk of sky that clunked me on the head”. I will likely have to work on changing this default setting the rest of my life. It is THAT ingrained. I have to work on being more optimistic.

4. Agree to disagree. I’ve actually changed in this regard to some degree. In the past, I use to think that two people could agree to disagree, but then I’d have to STOP LIKING THEM! (When this is your spouse… that is not altogether a good thing!)  Sure! I’d think, “Ok… we can’t agree here, so we will just agree to disagree!” But then in my mixed up thinking, because they were WRONG (grin), we weren’t “ok” until they came around to my way of thinking! Whew! At least there has been some major growth in this area. I am actually good friends with numerous people whom I do not see “eye to eye” with on every little thing.

What are your ingrained habits? Especially those that may pertain to an acquired disability? Are they positive or negative? More important, are they things that you can change?

Something else I discovered today: Chloe thinks 3rd grade boys have an amazing speech pattern. After all, they don’t actually use WORDS. They use sounds! For example:

“So… I threw the ball and it went WOOOOOSH, right by my head! It clocked me right in the head, BONK! So I started yelling for mom… “AAAARGH” I could hear her coming down the stairs, CLUMP, CLUMP, CLUMP. I could tell she was mad!”  I think Chloe would like it if I talked a little bit more like a 3rd grade boy!

Denise Portis

© 2009 Hearing Loss Journal

Something’s Missing…

My daughter was about 75% finished with this Thomas Kinkade puzzle when she realized she was missing a piece!

This past week, my daughter realized she was missing a piece of a puzzle. In spite of this, she stubbornly completed it. Her original intent was to frame the completed project, but after the missing piece was discovered she dejectedly took it apart and put it up. At least she didn’t let it get her too down… she went out and purchased a bigger, more colorful puzzle the next day!

Ever Feel Like Something is Missing?

We’ve had a tough month here in the Portis household. There have been some pretty major events that have taken its toll on us emotionally and physically. Terry has finally stopped having bad dreams at night, and my doctor is now  “on my case” as it ultimately disrupted my once regulated blood pressure. I was forced to make a medication change, and I see her again in two weeks. Basically this has NOT BEEN FUN.

When our children are little and something hurts them… chances are a “barbie doll band aid” or “spider man patch” was enough to make the “owwie” feel better. If their feelings were hurt, a simple pep talk and instructions to “shake hands and say you are sorry” sufficed. Having young adult children is no easy task. They are independent thinkers and for the most part make daily decisions with only occasional requests for advice from mom and dad. Kyersten will only be living at home full-time for another 8 months as she transfers to a 4-year college next August. Needless to say, I am “treasuring up” these days. Both of our kids work part-time and go to school full-time. They serve in our church and are busy. They are also old enough for life to hit them hard with tragedy and heart ache. As young adults, their “boo-boos” are more serious. It’s very difficult as parents seeing your child face their first “life changing challenge”. It won’t be their last, but it isn’t fun to witness the first and be helpless to intervene.

Perhaps because we’ve been experiencing some very real emotional duress, I have been “waiting for the other shoe to drop“. Have you ever felt that way? It may be that you’ve been through something difficult and even though things are looking up, you sense something bad is still going to happen. Perhaps it’s the result of living for a prolonged period of time under stress. I think we can get in the habit of feeling stress and pressure. Even when life begins to smooth out, we are in the habit of waking up tense. I can’t shake the feeling that something bad is going to happen again.

I wake up that way, and go to bed the same. This has affected even my tinnitus, balance and hearing! Stress and pressure only make acquired disabilities seem worse. Oh sure! This trial has brought me to my knees in a hurry. I believe in prayer and do not have to be coached to go to God when I need advice, comfort, healing, forgiveness or thankfulness. When tragedy strikes, I do have to remind myself… “GO PRAY”, because I’m often just trying to stay in one piece. S.O.S. prayers are harder for me… I guess because I’m already under stress and have little emotion or brain cells for doing something different.

Face toward Heaven... Chloe can set a good example

We just had a beautiful snow here in Maryland. We received 3-4 inches and it was the lovely, huge, fluffy flakes. Chloe and our family dog, Tyco, love the snow. Tyco loves it because he’s an Elkhound… a winter breed. Chloe loves it because it makes everything smell better. Being a hound-mix, she has a better sniffer… than even Tyco. Her muzzle, nose and floppy jowls were all made to collect and intensify scent. She can even smell a scent on the air and may taste and savor it by licking at the air with deep breaths and puffs! When snow is on the ground, smells are intensified, and she LOVES IT. She would spend hours in the yard if I could endure the cold that long.

Today in the yard, the dogs raced around the yard to play. While Tyco went to make his rounds along the perimeter of our fence, Chloe trotted around the yard, nose to the ground, sniffing and tracking all the wildlife scents left from critters in our yard from the early morning hours. She would trace many all the way to the fence and stop when she realized “it had gone over”. She would quickly pick up another scent, and race after it even if it sent her in circles, up and over tree stumps, or scrambling through the wintry bushes. Chloe was getting herself worked up over one scent trail, and I suspect it may have been something “bigger than normal” by the way she was snuffling, whining, and tracking. Eventually, she stopped her frenzied tracking and stopped short with limbs trembling and deep sighs. With the last bit of snow melting away between her footpads, Chloe turned her nose towards Heaven and stood in perfect stillness for almost 5 minutes. The only thing I could see moving was her nostrils and her ribcage. She even closed her eyes and enjoyed the scent of the air… of winter…

It struck me how poignantly clear her example was to me as her human partner. After a disappointing “hunt”, she was still able to enjoy what she was good at… smelling the scents of the winter bouquet caught up in the chilly breeze around us. I realized that although our family has experienced something that will always “show” as a heart scar in our lives, I cannot forget that life is usually VERY GOOD. I had to take a minute and point my own nose towards Heaven to express “thanks” for life and the blessings I have.

Get on Livin’ it!

Don’t allow yourself to look at life’s stresses and tragedy as the “norm”. To easily we embrace what we feel is our “lot” or what we deserve. Bad things happen… and they happen to every person. Matthew 5:45: “For He makes His sun rise on the evil and on the good, and sends rain on the just and on the unjust.” Bad things happen to good people. (Bad things happen to bad people too, but they are usually more of a life consequence than a random occurrence!) Don’t anticipate that bad things are going to happen. Life is good.

ready to come in?

Denise Portis

© 2009 Hearing Loss Journal

Collision

Pastor Drew Boswell instructs one of his twins, step-by-step through the process of climbing a mountain.

Our church just finished a series of messages called “Yellow, Red, Orange: Imagine the Impact When Church and Family Collide”. Yellow was a message about the church and its place in our everyday lives. Red was about the home and our priorities within it. Orange was a message about the collision of church and home; the result was a new color… orange. Orange is distinctive and the parts mixed have to be “just right”. Orange people have the right balance. The week we discussed the home, Pastor Drew took one of his twins and instructed him on how to safely climb a mountain. It was a fantastic object lesson for doing more than verbally instructing someone.

Not quite to the top yet, but close!

In order to make the biggest difference, in order to have the most lasting impact on the life of another, one needs to commit to hands-on training.

Climbing with someone with more experience makes a difference.

Pastor Drew‘s son made it to the top safely because of the: 1) instruction received by someone more experienced than he was, 2) the strong “spotters” on the floor who were one of the numerous safety precautions, and 3) his dad was stronger than he was and could assist him while also getting himself safely to the top.

Strong Examples

One of the things I like best about attending training sessions at Fidos For Freedom in Laurel, MD, is that teaching takes place between clients as well as client-trainer. There are clients who are culturally Deaf and late-deafened. Some clients use walkers or canes, while others are in wheelchairs or power scooters. New clients tend to gravitate towards other clients who have similar challenges. They are encouraged to ask questions. “Old-timer” clients and newbies both benefit from open communication. Having an assistance dog and a hearing loss is different than having a service dog and mobility challenges.

At the Hearing Loss Association of America – Frederick County chapter, new people attend not really knowing what to expect. An unexpected blessing and support often comes in the form of another person with hearing loss who has more experience. That experience can include things like advocacy, technical advice regarding hearing assistive technology, coping techniques with family and friends, and communication tips. Veteran members are strong examples because they had someone come along side them to assist when hearing loss was new to them.

I love interacting with other people who have Meniere’s disease, have hearing loss, are survivors of brain injury, or have cochlear implants. They are my “peer group”, and we learn from each other and make a difference by sharing our own life experiences as they pertain to these issues. Journeys are much more enjoyable with company.

“Life” Makes Us Good at SOMETHING

We are a sum of our parts; rather, who we are is the result of our life experiences. Not all of those experiences have been positive. In fact, some of those experiences may have been very negative, ushering in a major change in our life’s path. Some of the experiences were very positive. All experiences were used to teach us. I am unique and my life has had plenty of good and bad experiences. My life is only wasted when I choose to selfishly harbor all of those teaching experiences.

Some people think that something must be profound in order for anyone to profit from our sharing. On the contrary – life’s most ordinary lessons can make a difference to someone. This past week someone told me that they “discovered” the culinary pleasure of adding a little Feta cheese to chicken noodle soup. I’ve eaten this new-found delight four times this week! I’ve also had someone tell me that “parenting becomes a spectator sport when your children become adults… they still need you, but not in a participatory fashion”. This shared life experience has helped me as well.

Sometimes people may share something with you that you tuck away as an alternative viewpoint, but it may have only served to strengthen a perviously determined goal or decision. It may have been an opinion contrary to your own chosen morals, standards, beliefs and values. It still served a purpose; if not for any other reason than to strengthen a different decision. Don’t be afraid to share your life, both the mundane and profound experiences.

Imagine the Impact

I have been very up front with others about my faith. I do not believe religion has anything to do with real and lasting faith. At some point in time I determined that I was going to live out my faith. Who I was at church, would be who I was at home. The person my peers see at work, is the same person I am at home. Certainly, I am more “at ease” and comfortable in my pajamas drinking green tea and curled up with Chloe than I am when dressed in a business suit at work. Rather, I am talking about that inner person… the real me. I don’t want to be two-faced in my faith nor in my life.

Imagine how our relationships would change if we allowed God and our priorities that center around our faith, collide with the priorities we have at home and work. We’d all be walking around ORANGE, and more REAL than any past facade we once tried to model for others. If you walk around YELLOW, you have separated yourself from the world to the point you are not interacting or making a difference to those around you. You are very spiritual, but not very faithful. If you walk around RED, you quickly become self-centered and only see your immediate needs and problems. Complete independence isn’t a sign of strength. We were created to be dependent and to need relationships. ORANGE people strike that healthy balance. ORANGE people are influential without even trying.

Denise Portis

© 2009 Hearing Loss Journal

Operation Christmas Child and Thankfulness

Chloe and I went shopping for items to put into our Operation Christmas Child shoe boxes on Saturday. Armed with the following list, Chloe and I marched into the retail world:

GIFT IDEAS

TOYS
small cars, balls, dolls, stuffed animals, kazoos, harmonicas, yo-yos, jump ropes, small Etch A Sketch®, toys that light up or make noise (with extra batteries), Slinky®, etc.

SCHOOL SUPPLIES
pens, pencils and sharpener, crayons or markers, stamps and ink pad sets, writing pads or paper, solar calculators, coloring and picture books, etc.

HYGIENE ITEMS
toothbrush, toothpaste, mild bar soap (in a plastic bag), comb, washcloth, etc.

OTHER
Hard candy and lollipops (please double bag all candy), mints, gum, T-shirts, socks, ball caps; sunglasses, hair clips, toy jewelry, watches, flashlights (with extra batteries)

As a family, we had agreed to do one shoebox for a girl, and one shoebox for a boy. This year we chose to do items for two children ages 10-14 years old. At some point in the shopping trip, I realized how sobering it was to realize that for some children a pad of paper, pencils, and stickers were considered a luxury item. When I purchased some toothbrushes and toothpaste, the idea really came to settle in my heart and mind. We are so blessed here in the United States. Many items to us are necessities and common staples of our every day life. To children in other countries, those same items may be considered true luxuries and priceless gifts.

For the boy package, we purchased stickers, pads of paper, pencils, crayons, small slinky, small book, pencil sharpener, kaleidoscope, kazoo, skipper jump rope, ball, toothbrush, toothpaste, hand puppet of a triceratops, and some other odds and ends.

For the girl package, we purchased much of the same, but instead of a kazoo we included a set of bells and the puppet was a ladybug.

Perhaps it is because this is the week of Thanksgiving, that I am particular thankful for things I normally take for granted. I’ve often thought about how blessed I am that I live where I do in regards to my hearing loss and Meniere’s disease. I live within “spitting distance” of the Listening Center at Johns Hopkins Hospital, and my cochlear implant surgeon was one of the best in the country. I can easily purchase batteries for my CI, and have access to other assistive listening devices. I live within 65 miles of Fidos For Freedom, who only match assistance dogs with people within a certain radius of their organization. It is one of their commitments to provide follow-up training and support for the life of the dog. Trainers are all volunteers and live locally, so to participate and become matched with one of their special dogs one must live within a certain “workable distance”.

If you are having difficulty finding a way to be thankful this year due to life’s stresses, problems and trials… pack a shoe box for Operation Christmas Child! I think it will quickly help you discover things you are truly grateful for in the end! Plus… you will make a difference to a child who may never know the true meaning of Christmas if not for you! Check out the link and find out where the nearest drop-off location is for YOU!

Operation Christmas Child Link

Denise Portis

© 2009 Hearing Loss Journal